Landon and I both just want to start out by saying thank u to all the prayers for our Ava. Prayers go along way and we believe they helped guide Ava in the right direction. It got so scary last week, I honestly don’t even know how to say it. Ava developed Systemic Inflammatory Response Syndrome with Septic Shock and needed to be ventilated, sedated, and require blood pressure support for her heart. She was extubated on the weekend, and has been heading in the right direction. We got moved out of the PICU and onto the Pediatric surgery ward (4D). She is on nutrition support (TPN) in a PICC line. Her NG tube was removed yesterday and now we are waiting until her bowels are ready , as they completely stopped after the surgery on Wednesday. She is still fighting pain and uncomfortableness . She has 2 large incisions on her abdomen ( again..).
This is all a shock to Landon and I still. It hasn’t set in where we are, grasping what Ava has all gone through.
It is a blessing to see her awake and to hold her. She is so sleepy and not herself as her body is still quite weak. The doctors are all truly amazed how she recovered in the ICU. She is the true definition of a miracle. Thank you to everyone for the messages, gifts, and supporting words.