Friday, February 2, 2024

Hi everyone,

Last night Ava had a better sleep🙏🏼. Some rest gave her some more energy today. Her surgeon and Pediatrician did their rounds this morning and both agreed she needs to drink more today. Ava got a bunch of sluff around the incisions which was expected post operation and was uncomfortable to wash out 😩. We tried some more sips of water and popsicles. Movies on her iPad has been essential for distraction 🙏🏼🙏🏼. We took her to the playroom in the morning and afternoon. It’s amazing what a change in setting from the hospital room and toys/games can do for a child undergoing hospital care. She was excited to see the other kids and see sunlight through the big windows. We unhooked her IV and gave her some freedom.

Her surgeon came by late afternoon and said that he thinks she would be ok to go home tonight. 🙏🏼 We need to keep up with her fluids, slowly introduce more pureed foods, and give pain medicine. We have to stay in Edmonton till Monday just in case any concerns and see her Pediatrician Monday morning before we head home.

We are all settled this evening, it’s been a big day. Ava and Charlie were both so excited to see each other 🥹. Charlie started to recently crawl and immediately crawled up to Avas leg and held her. Ava complained of a lot of pain this evening and didn’t have any interest in food. Her pain tolerance blows my mind from what she has all been through in her life. Hoping tomorrow she will drink more and have some more to eat. 🙏🏼 We are thankful to be all together tonight.

We have a long road ahead with Avas healing. She misses going to school and all her friends there. We will take each day by day 🙏🏼 thanks everyone for keeping Ava in your thoughts and prayers. We really appreciate it ❤️🙏🏼