Hi everyone,
It’s been a long 36 hours, as Ava had her surgery yesterday morning. Last night was pretty rough 😞. She was in quite a bit of pain to the incisions in her mouth and throat. Getting any sort of oral intake or medications was extremely tough. From the surgery, the completed work has essentially “sealed off” the hole that needed to be grafted. So this creates an excessive amount of snoring. So on top of her pain, she would wake up to her “new breathing” and be startled, then swallow and start to cry… it was a long tearful night. This morning we took a positive turn. She tried some frozen pedialyte freezies which she was able to tolerate slowly🙏🏼. Then she took a spoonful of pureed toast. Throughout the day Landon and I encouraged as much as possible fluids. She tried some mashed potatoes.
She had the energy this afternoon to go to the playroom and make slime with child life- which brought the biggest smile to her face 🥹. We were finally starting to see our little Ava be more herself. ❤️🙏🏼She did a couple walks, went to the healing garden, and got to go pick a toy from the gift shop. She is still on IV fluids to keep her hydrated as her intake is still not sufficient enough, but we have come a long way since last night 🙏🏼.
Avas strict diet for the next 3 weeks will be puree. She will need to protect her incisions in her throat and mouth.
Let’s pray for a better night tonight for Ava and a good nights sleep 🙏🏼❤️
Ava's Adventure 
Look at you pretty girl ! Up and dressed and cute as ever! Sleep well princess!
LikeLike