Saturday, July 16, 2022

Hi everyone,

We are preparing for Avas dental surgery at the Stollery that’s this Monday morning. Due to her Digeorges syndrome and her cardiac history, she is requiring more extensive dental work.. has more cavities 😩. She is getting her top 2 front teeth extracted, and possible 4 more caps done. She is getting fully put under general anesthesia. Hoping she does well and recovers quick. 🙏🏼.

Her MRI of her carotid arteries is on august 15th. Once this done, we meet with the plastic surgeon to plan for surgery of her palate, which is a posterior pharyngeal flap. We have no date for this one yet. We are eager to have this done and over with. We are so discouraged ava has to go through another complex surgery again. It does not get any easier.

We had her ECHO at the Stollery recently which went really good. Ava gets scared coming into the hospital initially. Good distraction of cartoons and toys luckily help🙏🏼 her ECHO showed her heart is doing great, her bicuspid valve we are monitoring, and she has some small stenosis (narrowing). Overall was a great ECHO result.

Overall, she has been developing really well. Her speech has been progressing great. She has speech about once a week. She also sees her occupational therapist, which we have been working on potty training.

Ava loves going to daycare to play with her friends every day. We look forward this summer to play with friends in the sunshine and splash pool outside ☀️. Her 5th birthday is coming up August 21st. She’s growing up so fast ❤️☺️

One thought on “Saturday, July 16, 2022

  1. Ava, you are one amazing we girl and we are so happy to hear about all your successes and milestones! You are so special and we will continue to pray for you as you and your mom and dad go through the challenges you face! Keep smiling and enjoy everyday of fun and learning and laughing! By for now beautiful!


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