Thursday June 20, 2019

Hey everyone!

Finally Ava’s cast came off yesterday 🙏🏼🙏🏼🙏🏼. It stayed on a bit longer than expected- just over a month. Just glad it is off. She started walking on it right away. She got a sore on her heel from her cast that wore right through it when walking, but it’s already looking better today. She was very scared of the cast cutter, but overall did so well. So thankful she could FINALLY have a bath. Boy oh boy her leg needed a good wash haha. Extremely hard to keep toddlers clean after meals without having a “full bath”.

We had a couple appointments this last week. She seen her pediatrician and occupational therapist. We are arranging for Ava to see a speech pathologist. It is common for children with digeorges syndrome to have delayed speech development. Her pediatrician is impressed from how well Ava is doing with all her surgeries and hospitalizations she’s had regarding her development. We are booked to see speech beginning of July and eager to have them work with her.

Ava has been doing so well since her last surgery, the ostomy reversal. Landon and I can’t believe we are finally at the stage of deciding child care for her. It’s so nice to be at this point. Most parents make this decision at 9 months or a year. I have been off work for exactly 2 years now. We have decided to get a nanny that comes to the house and look after Ava. It will give us more comfort and hopefully make the transition of me back to work better. I’ll be planning to go back to work end of summer. This is scary but exciting. So thankful how well Ava is doing right now. We look forward to having a wonderful summer in the sunshine, playing in the water, and running in the grass. We plan to cherish every moment and enjoy all the time we have together before we are both back to work. Landon and I can’t believe how much Ava is growing up. She’s going to be 2 this August. Beyond grateful for her health and all the positives❤️